I’ve had similar atypical migraines and relief is possible! My doc initially started me on topiramate daily which wasn’t very effective for me. She then added amitriptyline which has been very effective for me at preventing migraines. I’m now taking 50mg of amitriptyline nightly and have started taking a monthly shot called Emgality. I hope to be able to stop the daily pills and just take the shot once per month. It’s really expensive but there’s financial aid available so I just pay $35 instead of $700+ per dose. I also have rescue meds if I should get an aura (such as a tingling in an extremity). I started with Sumatriptan but my neuro also recommended that I switch to compazine and Benadryl with these types of atypical or hemiplegic migraines. This has been effective as well but I haven’t needed the rescue meds in months. I still carry them with me on my keychain. The only expensive drug that I’ve mentioned is the Emgality shot which was not necessary for me to attain effective relief. I’m not a doctor but I’d be happy to chat about this! You don’t have to die to get relief!
I’m sorry to hear that. I also have had cancer (medulloblastoma). Treatment for this is what seemed to cause me to start having these atypical migraines. I hope you can find relief somehow.