Summary

RFK Jr. is using private medical records to create a registry of people with autism in the United States.

The National Institutes of Health is helping to collect private medical records from government and commercial databases, including “prescription records from pharmacies, lab testing, and genomics records from the Department of Veterans Affairs and Indian Health Service, private insurance claims, and data from smartwatches and fitness trackers.”

Kennedy, a longtime critic of vaccination, has made the study of autism one of HHS’s primary goals. He has called autism “preventable” and claimed “he can find a cure for the condition by September.”

    • andros_rex@lemmy.world
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      23 hours ago

      The school Hans Asperger sent autistic children to:

      Am Spiegelgrund was divided into a reform school and a children’s ward, where sick and disabled adolescents were unwitting subjects of medical experiments and victims of nutritional and psychological abuse. Some died by lethal injection and gas poisoning; others by disease, starvation, exposure to the elements, and “accidents” relating to their conditions. The brains of up to 800 victims were preserved in jars and housed in the hospital for decades.

    • Razzazzika@lemm.ee
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      20 hours ago

      Wonder if they’re gonna rebrand Aspbergers again as ‘the people useful to society’ again.

    • dogs0n@sh.itjust.works
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      24 hours ago

      Yes. The nazis tried to cure autism… (/s if it’s not obvious).

      Seriously, why are you comparing this to Nazis.

      • funkless_eck@sh.itjust.works
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        23 hours ago

        Why would you not? Unless you were sure there were checks and balances in places to ensure it doesn’t happen. Say, something like, not tracking disabled people, and/or, not abandoning judicial process and habeas corpus, and/or respect for legal precedence and norms that affirm trust in the process

        • dogs0n@sh.itjust.works
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          23 hours ago

          It does, to me, seem like a violation of privacy (looks like patients have no consent in whether their private data is collected).

          But, personally, I would think there would have been better, non-public ways of doing this if he really wanted to exterminate austistic people, etc.

          It being public, makes me think he wants PR, etc and wants to be the dude to cure autism.

        • dogs0n@sh.itjust.works
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          24 hours ago

          Lool thanks for the diss, I will try to keep my head held up high. Unless it was meant for the original comment, then I can forget about this ;(

        • dogs0n@sh.itjust.works
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          24 hours ago

          I cannot read the entire transcript, but from what I did read, it seems to be talking about how Nazis slaughtered children with autism.

          Maybe you can draw the conclusion that he (rfk) is collecting data on autistic people so that he can slaughter them too, but that seems very far fetched doesn’t it?

          If I’m missing something important from what I didn’t read, please let me know.

          • OmegaMan@lemmings.world
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            23 hours ago

            This administration is already sending innocent people to a concentration camp indefinitely and without a trial.

            That seemed farfetched not too long ago.

            • dogs0n@sh.itjust.works
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              23 hours ago

              I don’t know much about this, but just wanted to thank you for continuing the discussion even though I can’t myself because of a lack of knowlege here.

              Others prefer insults 🥹

          • die444die@lemmy.world
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            24 hours ago

            No, it does not seem far fetched. Look at the shit this administration is doing and wake the fuck up.

  • andros_rex@lemmy.world
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    23 hours ago

    Autistic and other children with exceptionalities are already tortured (and killed) at “troubled teen facilities.”

    These are almost entirely unregulated. There are no requirements that these facilities hire qualified staff, background check their staff, provide evidence based treatments. Children who are marked as mentally ill are not considered reliable narrators, so their accounts of abuse are not believed. (It’s funny - I try to report things that happened to me more than ten years ago, and it’s “too late” - but at the time they called me a liar, called it a symptom and hopped me up on Resperdal. How exactly does a teenager in one of these facilities get help?)

    Turnabout Ranch, the place that Dr Phil sent kids like Bhad Baby to, allowed kids to be hurt.

    There are already things in place that would facilitate an Aktion T4 style program. Southern states especially have horrendous child welfare systems, and children do die in “treatment.”

    • deaf_fish@lemm.ee
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      1 day ago

      The trick here is they don’t actually care if it’s autistics or not. They just want want to create another “other” for society to Target. So you’ll get them blasting this on news all over the United States of America " see this perfectly normal looking heartbeat, this is the autism heartbeat. We needed to put whoever this terrible person is in whatever terrible position we’re going to put them in".

      It’s just like sending people to El Salvador with mom tattoos. They don’t care if they’re in a gang or not.

    • ZILtoid1991@lemmy.world
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      1 day ago

      It’ll be suddenly revealed it’s a general health tracking database, and you’ll be denied healthcare coverage if you’re “not doing your part”, will be used to monitor women’s menstrual cycle to figure out who’s having “illegal abortions”, you’ll be fired for not waking up at 4:30AM to stroke the ego of the CEO, etc., all thanks to Palantir…

  • Phoenixz@lemmy.ca
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    24 hours ago

    Well somebody is ready to follow in the footsteps of the great dr Mengele already!

    And with “great” I obviously mean sick psychopath

  • TON618@lemmy.world
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    2 days ago

    I’m more worried about why he’s doing it, than that he’s doing it to be honest, because the only realistic use case I see for this is eugenics.

    • barneypiccolo@lemm.ee
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      In 1936, three years after taking power, the Nazis ordered families with a mentally or physically handicapped person to send them to nearby hospitals for the best treatment. Soon after, they started receiving letters that their loved one had passed away.

      The first to notice the pattern was the clergy, who realized that the families in their congregations who had vulnerable members were ALL getting these letters, and they rightfully concluded that a euthanasia program was going on.

      Many spoke out from the pulpit, demanding an end to this atrocity, and Hitler responded, saying he was shocked at this revelation, and promising to end it. He didn’t, of course, he just buried it, expanded it, and evolved it into the Holocaust.

      To Nazis, the best way to reduce the statistics of autistic people, is to reduce the numbers of autistic people, and the first step in doing that is to compile their names.

      Of course, the real issue is HOW are they going to reduce the autistic population? Considering how much MAGA openly admires the Nazis, it’s not hard to make an educated guess.

      • werewolfborg@ttrpg.network
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        1 day ago

        They don’t even have to kill anyone on purpose. They just have to force people to undergo experimental autism cures, which have historically killed patients. An example of this would be chelation therapy, aka using the medication used to remove heavy metals from the body under the (unconfirmed) assumption that autism is caused by heavy metals.

        If a database is good enough to connect pharmacy records, medical records, and even health info from smart watches (which a doctor or insurance company would not have access to) then it would need to link patient info together in a way that’s not as anonymous as they claim it to be. Theoretically, this could be enough information to force someone into doing these experimental treatments in order to keep their driver’s license (even if they’re otherwise high functioning enough to not be hospitalized) or force someone to be hospitalized with promises of being taught to be more independent later down the line.

    • Pyr@lemmy.ca
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      2 days ago

      The only result they will find is that autism diagnosis happens more often in areas where it’s socially acceptable o go see a doctor for concerns about mental health. Deep red states will have “less” autism because hardly anyone will be going to the doctor and expressing concerns that they may have autism, and then they just go undiagnosed.

  • pleasegoaway@lemm.ee
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    2 days ago

    Why is it so hard for some people to believe that there is genetic variation in the human brain?

    • UltraGiGaGigantic@lemmy.ml
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      24 hours ago

      Some believe that their way of thinking, their neurological tendencies are the “right way” to do things in life. Others who arent like that are wrong in their eyes. Same with skin color and religion.

    • sunflowercowboy@feddit.org
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      Because the genetic variation is confused and muddled by foundational things they can’t understand.

      Simple things like family structure and the importance of it. A lot of autism overdiagnoses are purely from the developmental differences; economic class, quality of life, nutrition, exposure, and obviously parents or lack there of.

      For example, simple acts like kids getting to play in the dirt exposes them to beneficial bacteria. Which I could also see laying the groundwork for gut bacteria. With how common kids do try and eat it, along with developing nations cooking with it, seems at least conceptually plausible.

      I believe in autism and am not denying its existence as my fiancée has autism.

      I am more saying that there is a huge upbringing differential that can cause kids to experience trauma. Trauma that can give the same responses. Social media enables this issue by pushing kids who don’t have access to self identify, pushing a false representation. However, it is good for kids to be trying to put the pieces together - they just need help.

      • SoleInvictus@lemmy.blahaj.zone
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        2 days ago

        Trauma that can give the same responses.

        That’s me! Early in therapy for CPTSD, we spent some time trying to determine if I’m autistic or just have autistic tendencies due to CPTSD. Turns out it was the latter.

    • monotremata@lemmy.ca
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      2 days ago

      Especially since he’s already been on TV talking about how “these are people who will never pay taxes. they’ll never hold a job. they’ll never play baseball. they’ll never write a poem. they’ll never go on a date. many of them will never use a toilet unassisted.” He’s explicitly pushing the narrative that autistic people are useless.

      Seriously, I was thinking about getting evaluated, and this gives me the chills. I will not be seeking an evaluation at this time.

      • Novocirab@feddit.org
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        2 days ago

        Seriously, I was thinking about getting evaluated, and this gives me the chills. I will not be seeing an evaluation at this time.

        A lot of people are probably going to make the same rational decision — which, of course, will make the number of issued diagnoses go down. These fuckers will most likely try to take that as evidence that their policies worked.

    • enthusiasticamoeba@lemmy.ml
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      2 days ago

      Also, the term Asperger’s was coined in Nazi Germany to help determine which patients with autism (back then considered a subgroup of schizophrenia) were fit for labor camps and which were destined for death camps.

      Which is part of the reason we don’t use the label Asperger’s anymore.

    • rottingleaf@lemmy.world
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      2 days ago

      RFK is not the killing type, he is more of a “grandma giving you kombucha something sweet drink instead of actual medicine” type. He even talks like one.

      That’s dangerous, but blood purity is something I’d expect his background to actually prevent him from believing to be good. With ecology, eating raw meat and such things. Not the kind of people to think being inbred is good.

      • AutistoMephisto@lemmy.world
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        2 days ago

        Exactly. I can see him banning any amphetamine/stimulant medications for ADHD first before having them rounded up, or instead of banning them outright, they decide to use them as a leash on people who could be problematic. “Do this thing for that long, and you get your dose. Break the rules, and we cut you off.”

        • rottingleaf@lemmy.world
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          2 days ago

          I think he was for less regulation for medications, not more, and more regulation for food, not less. Anyway guessing what will he do is not very useful.

  • collapse_already@lemmy.ml
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    2 days ago

    Their database should track microplastics exposure, pfas exposure, lead exposure, and a whole bunch of other pollution exposure. Bet it won’t, because a correlation with those is not a desirable outcome.

    • conditional_soup@lemm.ee
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      Nope, microplastics made it onto the snowflake no-no naughty boo-boo list of words you can’t use in government documents anymore. Wish I was making this shit up.